I am the oldest of four children, spread over 14 years. The third of us, my baby sister, is 10 years younger than I am, at 22. She was born with renal artery stenosis, which means that the renal artery was too narrow and her kidneys could not function. She spent much of her first year of life at a children’s hospital. Until she was a toddler, she was fed largely through a feeding tube snaking in her nose and down her esophagus. She also was hooked up to a dialysis machine every night. At 16 months old, she underwent a kidney transplant, using a kidney donated by my mother. After that, we had a brief respite from medical problems. Unfortunately, the dozens of daily pills that she has had to take since toddlerhood to avoid rejection of her new kidney have caused her poor body to be wracked with medical issues. She has weak bones, which has led to scoliosis and 2 major back surgeries to insert a great deal of titanium to support her spine. She’s had a few different kinds of thankfully early detected cancers. During her last back surgery, she also suffered a stroke and lost her sight, thankfully temporarily.
She went to the hospital yesterday with what is believed to be an infected gallbladder. Of course, with my sister, nothing is ever simple. No. You go to bed thinking she’s doing okay, and she always, always, always deteriorates overnight. Overnight when I was 9 months pregnant with my youngest, she went from feeling better after her back surgery to having a stroke by the time I woke up. Last night, apparently, she went from chatting with me at bedtime to pulmonary edema and not being able to breathe and oxygen by the time I woke up.
My baby sister is in a hospital a state away. I get frustratingly infrequent updates. I need to deal with everything at home for the family, which keeps me busy, but my sister will be always in my thoughts today while I am the daughter who makes sure shit gets covered. I will do what I need to do, but I’ll be fighting tears.